CYCLISTS are gearing up for a three day, 380km adventure across Munster to raise funds for five year-old Sophie Mulcahy who suffers with a rare condition, Ohdo Syndrome.
The Mini Munster Tour which begins on March 2 has been organised to enable Sophie to travel to the UK and the US for treatment.
“The reason behind the cycle is they are after finding out what may have caused Ohdo Syndrome – there has been a break- through in the genetics side of it. The hope is to get her to the UK for research to establish if a certain gene is present,” said Sophie’s father Liam who is originally from Kilmallock and resides in Rhebogue.
“If it’s present, it usually causes the malfunction in the body. It has only been brought to light in the last few months in Manchester. If she has it, she can go for further review in the States in November,” he added.
Sophie who is unable to walk or talk is the only recorded case of Ohdo Syndrome in Ireland.
She spent her first six months on a ventilator in Our Lady’s Children’s Hospital, Crumlin, and has already undergone six heart operations and other procedures.
The condition is so rare that there are only 30 cases recorded worldwide.
Following Sophie’s diagnosis Liam and Stacey founded Cycle 4 Sick Children which has already built up a national following for its community work as well as its tireless fundraising efforts for worthy causes.
Every time they get on their bikes the Cycle 4 Sick Children team create awareness for children’s disabilities and serious illness in Ireland. They do this by educating the public and raising funds for children’s services in Limerick and Tipperary. Through their endeavours they have supported The Jack and Jill Foundation, Enable Ireland, and Crumlin Hospital. They have also highlighted the lack of services in Ireland for disabled and seriously ill children.
“Our aim is to help to raise funds and promote awareness in helping kids with severe neuro disabilities,” said Liam of why Cycle or Sick Children was founded.
“Being a parent of a child with a disability or a syndrome, knowing that you constantly have to battle for their right and their equality seems sometimes impossible, but never give up, keep going until you are heard as you are their voice,” Liam added.
For more details on the cycle contact Liam on 087 7642550.