Funding sought to modify sick young girl’s family home
THE FAMILY of a young girl currently battling a rare genetic cancerous disease, is seeking the public's help in upgrading their home to provide a safe and supportive environment for her ongoing treatment.
Catherine O'Brien Murphy has launched an appeal to support her six-year-old grandniece, Sarah Connery, who has been diagnosed with Wagner's Syndrome.
Young Sarah currently lives in London, but her father Patrick Connery and his family originally hail from the Kilmallock and Kilfinane areas.
According to her grandaunt, Sarah's journey began two years ago when she was diagnosed with Uveitis, a condition affecting her eyes, which has left her registered blind, and needing a cane.
According to Catherine, Sarah's treatment regimen involves monthly low-dose chemotherapy and weekly injections, alongside daily medication to prevent further cancer development.
The family's next step is an upcoming operation scheduled to take place at Great Ormond Street Children's Hospital in London.
This operation, set to take place in June, aims to improve Sarah's eyesight, although the outcome remains uncertain.
Catherine adds this condition requires modifications to their home such as lighting enhancements, especially on the stairs, and a sheltered area is necessary in the backyard to protect her from sunlight and the risk of sunstroke.
Despite having lost her brother Joseph five years ago at the age of four to another rare genetic disease, Sarah is supported by her “two amazing sisters,” Kacey and Khloe.
Catherine O'Brien Murphy has launched a GoFundMe campaign to raise funds for the home upgrades and medical expenses.
“Any donation would be appreciated,” added Catherine.
Further details of Sarah's story and information on how to donate can be found on GoFundMe by searching A Chance For Sarah.