A CHARITY for children with acquired brain injuries will hold their third annual event at the end of this month, in memory of a young boy who was struck by a car outside his home in Clarina.
Ian’s Trust was founded by the parents of Ian Cusack, who passed away tragically two years ago, aged 9, due to an acquired brain injury sustained four years previous, when he was struck by a car.
The event is called To The Moon and Back, explained Ian’s mother, Orla Cusack, because she told Ian every day “she loved him to the moon and back”.
His mum said Ian was an active child who loved swimming and playing on his holidays in Kilkee before the accident.
“It’s seven years this year since his accident, he would have been 12 this year. He would have being doing the 10km, he was that type of a child,” she said.
The charity, family event is for people of all fitness levels and participants can choose between doing a 60 kilometre cycle, a 10 kilometre run or a five kilometre walk.
Mrs Cusack said that during the four years Ian lived with an acquired brain injury they had very little support, as Ireland only has acquired brain injury organisation for adults.
She explained that the family had to fight for every service they received for Ian after the accident. Ian’s Trust are still very much a local charity trying to support a national problem.
“What we found on our journey with Ian was that the people were fantastic; it was just that we were fighting against the system,” she explained. “I am a nurse myself and I worked in Temple Street. Because I was a nurse I knew the care that he needed, I just kept fighting and we got it eventually,” she explained.
Ian was five when a car hit him outside his home. He had to undergo surgery to relieve the swelling in his brain and was paralysed and unable to speak.
“His last words were at the scene of the accident: ‘Pick me up daddy’, he never ever spoke after that again. You can let something like this just kill you, but we felt that we wanted to take a positive out of such an awful situation.”
The To the Moon and Back cycle and run takes place Sunday, May 31 in Kilkee. Registration at www.ianstrust.com